For anyone who has never dealt with it, cancer treatments SUCK!! The type of chemo he had (yes, who knew there were different types???), didn't make him that ill...He didnt lose his hair...he threw up some, but not very much...What was the worst for him, were his daily (M-F) radiation treatments...The radiation wore him out...it made him weak...it gave him sores in his mouth...it burned his skin...it killed all hair growth in the areas that were treated (bottom half of his face, and bottom part of the back of his head)...The combo of radiation and chemo, made foods taste like metal...made things even water, taste waxy...At about 25-30 lbs lost, we decided to have a PEG tube feeding tube put in...simple operation that inserts a tube directly into his stomach...he now could 'eat' cans of what I call, feeding tube goop, or goop for short! We had tried everything else, soups, ice creams, milk shakes, protein shakes, juicing...they didnt work...the feeding tube will be his main source of nutrition...
Oh, I think I forgot to mention...for all of these treatments, Boy or both Boy and Girl, had to live about two hours away from our home...hence, no minime there with us...It was hard to say the least...We have had to ask for more help from people than we ever have in our lives...We have needed help with our daughter, our bills, emotional support, housework, basically everything in our lives...
We had the great pleasure of being able to stay at an American Cancer Society's Hope Lodge while we were away from home...These places are AMAZING to say the least...We did not have to pay to live there...We had our own little apartment type room...We had four HUGE kitchens to keep our food in, and to cook in...We had multiple TV rooms, to relax in...There were activities, games, crafts, meetings...They had free transportation around town, to take Boy to and from the hospital, to go to the pharmacy, grocery store, etc...
And the people we met there, will be life long friends...We have met and fell in love with other cancer patients, and other care givers...We have all had long talks, we have cried, we have lost lives, but most of all, we have gained...We have gained love, and support, and friendships with others who were/are going through the same hell that we are...Those who know me, know that I am not a religious person, spiritual yes, religious no, but I do feel, my Higher Power has blessed me and Boy with this Hope Lodge...
We had restaurants from that town come in and cook suppers...or bring in their own food and cater to us...we had stores and restaurants from that town donate food to the Lodge....God, I loved 'Bread Tuesdays'!! We would get a HUGE bread and bakery delivery from Hy-Vee (grocery store) and Panera Bread (restaurant)...we had so many bagels, doughnuts, breads, baguettes, etc...it was amazing!!! We had local volunteers from the college (GO HAWKEYES!) and from local churches who would come in and play games, do crafts, cook, clean...anything you could think of....
Boy finished his treatments the week of Thanksgiving 2011...I got to bring him home the day before Thanksgiving...That was the best gift I could get...
I need a breather....
Boy Loves Girl, Girl Loves Boy...
Sunday, January 15, 2012
Our Life
This is the story of our life...of how very much Boy loves Girl, and Girl loves Boy...
We met when I was in my mid 20's, and he was in his mid 30's...It was love from the very first moment...A Love, like I have never known...we were married within 6 short months of dating...We knew we were meant to be together forever...We always joked that we had to stay together, because no one else would ever have either of us, LOL...We moved from our home in AZ across the country, for him to be closer to his family, and to be back in the place that he loves, IA...
Not known to us at the time, Boy has given Girl the greatest gift ever...The gift of a child...Our daughter Montana was born just 8 months after we got to Iowa...I can never thank him enough, for this gift...
We have had hard times...We have had family members die...He has struggled with addiction and alcoholism...We have struggled at times to pay bills...But we have always remained true to each other...
Jump to current day...maybe someday, I will go in and fill in the blanks above, but not right now...Current day 01.15.12...In exactly 7 days we will be celebrating our 10 year wedding anniversary, hopefully, maybe...
My Boy has been fighting cancer since his first tumor popped up under his tongue in November 2010...With that very first surgery, we learned, that my Boy has Squamous Cell Carcinoma..in most people, this cancer appears as an outside of the body skin cancer, but not with my Boy...his was all inside his body...It was a very small tumor, about the size of a pencil eraser...They removed it, took out more than they needed in order to get ALL of the cancer cells...They tucked and stretched his tongue, and sewed him all back up...Slip slap, easy as that...
Fast forward to August 2011...We took my Boy into a local ER for what we thought was a swollen glad in his neck that had popped up, and was causing him pain...one CT Scan later, and the Docs are sending us back to our Cancer hospital in Iowa City, to meet with his oncologist/surgeon again...This time, it will not be as easy to take care of...After one PET scan, and a fine needle aspiration, it was confirmed, cancer again, of the same type...The next day, my Boy had surgery again...They did what is called a Radical Neck Dissection...they took out his tumor, which was larger than they thought, his jugular vein, all of his lymph nodes out of that side of his neck, and a major neck muscle...They also, while they were in there scraped cancer cells off of his vocal cords, and a neck tendon...After 5 short days in the hospital, Boy was allowed to come home with me...He was to come home and heal, to get ready for his next step...An 8 week course of chemotherapy and radiation...
I will stop here for now....
Boy Loves Girl, Girl Loves Boy
We met when I was in my mid 20's, and he was in his mid 30's...It was love from the very first moment...A Love, like I have never known...we were married within 6 short months of dating...We knew we were meant to be together forever...We always joked that we had to stay together, because no one else would ever have either of us, LOL...We moved from our home in AZ across the country, for him to be closer to his family, and to be back in the place that he loves, IA...
Not known to us at the time, Boy has given Girl the greatest gift ever...The gift of a child...Our daughter Montana was born just 8 months after we got to Iowa...I can never thank him enough, for this gift...
We have had hard times...We have had family members die...He has struggled with addiction and alcoholism...We have struggled at times to pay bills...But we have always remained true to each other...
Jump to current day...maybe someday, I will go in and fill in the blanks above, but not right now...Current day 01.15.12...In exactly 7 days we will be celebrating our 10 year wedding anniversary, hopefully, maybe...
My Boy has been fighting cancer since his first tumor popped up under his tongue in November 2010...With that very first surgery, we learned, that my Boy has Squamous Cell Carcinoma..in most people, this cancer appears as an outside of the body skin cancer, but not with my Boy...his was all inside his body...It was a very small tumor, about the size of a pencil eraser...They removed it, took out more than they needed in order to get ALL of the cancer cells...They tucked and stretched his tongue, and sewed him all back up...Slip slap, easy as that...
Fast forward to August 2011...We took my Boy into a local ER for what we thought was a swollen glad in his neck that had popped up, and was causing him pain...one CT Scan later, and the Docs are sending us back to our Cancer hospital in Iowa City, to meet with his oncologist/surgeon again...This time, it will not be as easy to take care of...After one PET scan, and a fine needle aspiration, it was confirmed, cancer again, of the same type...The next day, my Boy had surgery again...They did what is called a Radical Neck Dissection...they took out his tumor, which was larger than they thought, his jugular vein, all of his lymph nodes out of that side of his neck, and a major neck muscle...They also, while they were in there scraped cancer cells off of his vocal cords, and a neck tendon...After 5 short days in the hospital, Boy was allowed to come home with me...He was to come home and heal, to get ready for his next step...An 8 week course of chemotherapy and radiation...
I will stop here for now....
Boy Loves Girl, Girl Loves Boy
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