And the story continues....

So, Girl got to bring Boy home, just in time for Thanksgiving...It was amazing...I made two different kinds of soup...On Thanksgiving day, we invited Boys mom over to celebrate with us...I think, even though he wasnt feeling well, that was good for him...We all ate, Boy even ate a little bit!!! And we laughed, and joked...

Here we are, done with treatment!!! Boy should start feeling better soon, eating more, gaining strength, spending more time with Bug...That didnt happen...

Boy would have good days, and Boy would have bad days...Some days he would try to eat real food, some days he wouldnt...some days he would ask me to help him go sit outside in the sun, and some days he wouldnt...some days he would be awake for the majority of the day, and some days he wouldnt...

On 12.19.11, Boy asked me to take him to the ER...he was REALLY not feeling well, he had passed out a couple of times, and his chest was hurting him...Off we went to our local ER...We get in there, explain his situation, medical issues, etc...The Dr's start running tests...Chest Xrays...Blood draws...Get an IV in him (Thank you to the Mercy Flight Team Captain <3)...Chest xray comes back bad...They are thinking he has a bad case of bacterial pneumonia that his body is trying to fight...Lets do a PET scan, to look around...Blood work comes back bad...Hemoglobin level is extremely low...Now they are talking blood transfusion...We will be admitted (fucking duh)...PET scan comes back bad...

For those who don't know, in Boy's case, a PET is very important...They give him something special to drink, wait a little while, and then put him through the machine...The drink they give him, can attach (in a sense) to cancer cells, tumors, etc, and light up...

Without any other tests, we are told Boy has 'abnormalities' showing up on his PET scan in his lungs, liver, kidneys, and bones...One thing we knew, was it was time to cry...Boy has NEVER had an abnormality show up on a PET scan, that wasnt cancer...

Boy ends up staying in the hospital for five days...Blood transfusion...Liver and Lung biopsies...Buttloads of antibiotics...Girl gets to take Boy home for Christmas...

Christmas day 2011, was a good day...Boy got to see his grandma for the first time in a LONG time...Girl cooked...Bug played...Boy rested....

12.26.11...Girl goes early morning day after Christmas shopping to find some good deals...Girl gets call from Boys Doc...Liver biopsy is back...it is cancer...Same type of cancer as before...Girl has to go home and tell Boy...

Boy handles the news okay...he said he knew...in his heart he already knew...Girl and Boy cry...

12.29.11  Girl takes Boy back to the hospital...Boy had passed out a couple more times...This time we went to the ER at his cancer hospital in Iowa City...We took with us, all of his test results from the hospital by home...Boy's pneumonia is getting worse...white blood cell count very high...Boys body is fighting both the pneumonia and some other type of infection the docs dont know...Docs change up his antibiotics, puts Boy on 5 different ones...Docs also change up his pain meds, due to the confirmed liver cancer...Girl takes Boy home for New Year's Eve...

Girl and Boy and Bug spend as much time together as possible...Girl cooks...We watch TV...We laugh...

01.05.12 Girl takes Boy back to the hospital...Boy started showing signs of a stroke...Head tilted largely to the left...Drool coming out of the left side of his mouth...Cant hardly use his left arm or hand...Talking nonsense talk...Not being able to stay awake for long...

More Chest xrays...more blood draws...oxygen...Neurological exams...Head CT Scan...We, again, get admitted...Chest xrays come back worse than they looked in mid-December...Infections are not going away...Docs have no concluded, that Boy did not have a stroke...his liver was not filtering out his pain meds as it should...They cut back on his pain meds ALOT...Said the other docs has prescribed way too high of a dose...Another change in antibiotics...Girl gets to take Boy home 3-4 days later...

01.13.12 The day we have been waiting for...The day we get to go meet with all 3 of our docs in Iowa City, to find out more about this spread of cancer...It has been nerve wrecking to have to wait this long...We go to have blood draws first, then plan on going to meet with radiation doc, and then neck surgeon doc, then circling back around to meet with chemo doc, who would have had time to read Boys blood draws...That didnt happen...Went to have blood draws, and chemo docs nurse said they cancelled our other appointments for the day, and that chemo doc would see us now...

Chemo doc is great...comes in, asks us what we know so far, so we tell him all we know...He says it isnt good...The cancer that we confirmed in the liver, is also attacking the lungs, kidneys, and bones...They dont need to do biopsies to know this...We need to have a bone scan done, to see how much it has spread into the bones...If it has not spread too much into the bones, we can do chemotherapy...It would be a once a week chemo treatment and every third week, Boy would wear home a chemo fanny pack, that would give him a lot of extra chemo for a few days...If the cancer has spread too far into the bones, we dont think the chemo option will be on the table anymore...

Odds?  Chemo doc was right...No one has an expiration date on them...No one can tell anyone when they will die...Best estimates based on previous patients that chemo doc has had...With no chemo, a few weeks, to a few months...With the chemo treatment, could be up to a year...Boy grabs Girls hand, and cries...

This suggested chemo treatment, will not kill Boys cancer...It will prolong boys life, but eventually, the cancer will win...Chemo doc says Boys quality of life will actually improve with this type of chemo...Once it gets into Boys body, and starts attacking the cancer, Boy will have less pain...For some reason which I still dont quite understand, this chemo will give Boy more of an appetite...Worst side effect, a bad rash...

Girl and Boy get a hotel room in Iowa City for the night...Neither one of us could even attempt the two hour drive home...Girl drinks, Boy takes his pain pills...Girl and Boy cry and hold each other all night...That night, I said the hardest words to Boy that Ive ever had to say...I told him that I will stand by his side and fight for as long as he wants to fight, and when he wants to be done fighting, we, as a team, will be done fighting cancer...

Boy wants to do the chemo treatments...Current day 01.16.12...We will call boys docs in Iowa City tomorrow am when they open, and ask for a referral to a cancer hospital here in town...We will not (hopefully) have to go back to Iowa City...

Breathing time.............

Boy Loves Girl, Girl Loves Boy...

http://www.youtube.com/watch?v=S-aPyU1o8iM&list=FLEhpGP7-
vlm3t7e3bR6EmFg&index=20&feature=plpp_video

http://www.youtube.com/watch?v=DmBSGlXqC4Q&feature=fvwrel